Donate Blood. Save Lives.๐ฉธ
Welcome to Ultra Violet, a charitable community event focused on bringing awareness to the importance of blood donations in giving life to individuals living with rare blood and bone marrow disorders. To learn more about Diamond Blackfan Anemia, the focus of this event, click here.
Through community partnerships and individual charity, our local impact is quickly becoming more than just a drop in the bucket. Join our Flagler Family for a day of educating, networking, charitable giving, and community living! We can save lives and have fun doing it!
Looking to be an active part of this event?
Drop us a line.
โ Effects 7 in every 1 million babies
DBA is a rare disease.
โ Typically diagnosed in the first year of life
Symptoms usually appear by 2 months
โ Requires chronic blood transfusions every 3-4 weeks until year 1 of life
Donor blood saves lives.
โ Treatment includes blood transfusions, steroid therapy, and bone marrow transplant
Treatment is risky and outcomes are not guaranteed.





